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系統識別號 U0026-0608201304323200
論文名稱(中文) 初期失智症家庭照護者照護經驗探索
論文名稱(英文) The Experience Exploration of Family Caregiver Care with Dementia in Early stage
校院名稱 成功大學
系所名稱(中) 創意產業設計研究所
系所名稱(英) Institute of Creative Industry Design
學年度 101
學期 2
出版年 102
研究生(中文) 王櫻璁
研究生(英文) Ying-Tsung Wang
學號 PA6001041
學位類別 碩士
語文別 英文
論文頁數 79頁
口試委員 口試委員-白明奇
口試委員-王靜枝
口試委員-簡聖芬
口試委員-鄧怡莘
指導教授-鄧怡莘
中文關鍵字 失智症  家庭照顧者  服務設計  使用者經驗 
英文關鍵字 Dementia  Family caregiver  Service design  User experience 
學科別分類
中文摘要 隨著人口老化與失智症的普遍,失智症家庭照護對象日益增加,而失智症患者需要長時間照顧而導致家庭照護者之負擔龐大,然而現今政府提供的失智家庭照護服務,雖唯有照護時數與經濟補助,但效果相當短暫亦無法解決根本問題。做一個好的服務,設計師必須要以使用者為中心的全然了解,家庭照護之問題不僅發生於病人與照護者之間,更廣泛於家庭責任、情感、經濟、社會態度等等,因此更需要脈絡膜行供予未來之服務設計。
因此本研究以脈絡訪談與設計探針建構家庭照護者之模型,並整理該對象之期待做為需求與建議,以供未來設計與服務之方向指標。本研究第一階段以脈絡訪查探索家庭照護者,藉此初步了解家庭照護問題現況並歸結主要的問題因子與反應。第二階段延續訪談之資料作為設計探針之素材,經由邀請家庭照顧者一同於生活日記寫作、問題詢問等等,以貼近問題實況的狀態下,蒐集家庭照護者之個人觀點與經驗。最後,將設計探針之實驗後訪談資料進行影響因子與反應的驗證,將結果與家庭照護者之期待以訪談脈絡連結而建構家庭照護者之問題脈絡模型。
本研究發現家庭照護者之主要問題因子可分為六個主要方向:照護、溝通、情緒、資訊、工具與經濟,而家庭照護者除了需要有效的時間管理以增進個人健康監測外,在資訊方便,有效的資訊彙整與使用上的擷取、紀錄、提醒是相當有必要性的。然而,雖然大部分影響為負面經驗,但仍舊存在正面經驗,此可供為未來設計之正面發展之運用。
英文摘要 As population aging and prevalence of dementia, the dementia family caregiver increase as time. The dementia patient care takes long-term care had produce problems to family care. Though government has provided dementia home care hours and economic support, it still did not solve problem radically. To build a good design, designer must take family caregiver as cater to understand. But family care problem involved many aspects. Hence, it is important to provide experience context to design in a holistic view.

Hence, this research aimed to build the model of dementia family caregiver care and generalize the needs and advice from target’s expectation as the direction pointer for future design or service. First, we observe and interview family caregiver by contextual inquiry to realize the situation of family care and generalize main reaction and factors. Then, we extend the result of contextual inquiry as material for design probes. The design probes invite family caregiver to record and express ideas with tasks. Finally, verify relationship between factors and reactions by interview and connect factor, reaction and needs.
As a result, the models are delivered in five factor categories. We find out the main factor categories are care give, communication, emotion, information, and financial stress. Family caregiver need effective time and health management, the usable information operation of search, remind and record on arrangement and usability is necessary. However, most experiences are negative but still remain positive experience by family support which is an important point to consider for design and service.
論文目次 Table of Contents i
List of Tables iii
List of Figures iv
Chapter 1 Introduction 1
1.1 Background 1
1.2 Motivation 2
1.3 Research Goal 3
1.4 Research Scope 4
1.5 Research Flow 4
Chapter 2 Literature Review 5
2.1 Dementia 5
2.1.1 Stages of dementia 6
2.1.2 Main symptoms of dementia 7
2.2 Family caregiver 9
2.2.1 Family caregiver’s skill and knowledge 10
2.2.2 Care Burden 11
2.2.3 Positive aspect of caring experience 12
Chapter 3 Problem factor and context 13
3.1 Data collection 13
3.2 Analysis 14
3.2.1 Factor categories 14
3.2.2 Context of family care work 18
3.3 Result 27
3.3.1 Pattern of family caregiver work 27
3.3.2 Factor categories of family caregive 28
3.3.3 Factor and reaction in family care experience 29
Chapter 4 Verification and need 35
4.1 Data collection 35
4.2 Analysis 42
4.2.1 The correlation of factor and reaction 42
4.3 Family caregiver’s needs 47
4.3.1 Result of family caregivers’ opinion 47
4.3.2 Connection of reaction and needs 52
Ch5 Discussion 53
5.1Experience model and context discussion 53
5.1.1 Experience model of care give factor 54
5.1.2 Experience model of communication factor 54
5.1.3 Experience model of emotion factor 57
5.1.4 Experience model of information factor 58
5.1.5 Experience model of financial stresses factor 60
5.1.6 Context in whole factor categories 60
5.2 Design Implication 61
Chapter 6 Conclusion 64
6.1 Conclusions 64
6.2 Value of research 65
6.3 Future work 65
Reference 66
Appendix 68
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