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系統識別號 U0026-0308201717470300
論文名稱(中文) 照顧者父母照顧癌症兒童之心理困擾與未滿足之支持性照護需求
論文名稱(英文) Psychological Distress and Unmet Supportive Care Needs of Parents as Caregiver of Children with Cancer
校院名稱 成功大學
系所名稱(中) 護理學系
系所名稱(英) Department of Nursing
學年度 105
學期 2
出版年 106
研究生(中文) 邱玲雅
研究生(英文) Yulanticha Diaz Ahwalia Aziza
學號 T26047108
學位類別 碩士
語文別 英文
論文頁數 92頁
口試委員 指導教授-黃美智
口試委員-林梅鳳
口試委員-陳建旭
中文關鍵字 none 
英文關鍵字 caregiver  childhood cancer  parents  psychological distress  unmet supportive care needs 
學科別分類
中文摘要 none
英文摘要 Background: Having children diagnosed with cancer is a stressful condition for parents, facing physical, psychosocial, and financial burdens in life. These problems parents face are frequently neglected by health care providers and people around them when in reality parents play a significant role in caregiving children with cancer.
Purpose: To identify the top rank of unmet supportive care needs, the prevalence of psychological distress, and the correlation of unmet supportive care needs and psychological distress among parents of children with cancer in Indonesia.
Methods: A cross-sectional study was conducted among 100 parents of children with cancer from pediatric ward of two public hospitals in Central and East Java, Indonesia. This study chose the Supportive Care Needs Survey for Partner and Caregiver (SCNS-P&C45) Indonesian version to measure unmet supportive care needs, and Hospital Anxiety Depression Scale (HADS) Indonesian version to assessed psychological distress including anxiety and depression.
Results: Of the 100 parents surveyed, 83% had more than ten unmet needs, 49% encountered anxiety, and 25% had depression. The highest need for supportive care was information needs (66.68±23.07). Anxiety not only correlated with the total score of needs (p<.001; r=.351) but also each domain of needs including informational, health care service, psychological, work, and social needs.
Conclusion and recommendation: Most common needs among parents of children with cancer were informational needs. Anxiety is strongly correlated to unmet supportive care needs. We recommend health care providers to activate support groups to decrease parents’ anxiety and depression. There is also a necessity to increase parental education to fulfill their needs of information.
論文目次 TABLE OF CONTENT

ABSTRACT I
ACKNOWLEDGEMENT II
TABLE OF CONTENT III
LIST OF TABLES VI
LIST OF FIGURES VII
CHAPTER ONE INTRODUCTION 1
1.1 Research Background 1
1.2 Gap of Knowledge 2
1.3 Significance 3
1.4 Research Purpose 4
CHAPTER TWO LITERATURE REVIEW 4
2.1 Primary caregiver of children with cancer 5
2.2 Psychological Distress among Caregiver of Children with Cancer 7
2.3 Unmet Needs among Caregiver of Children with Cancer 11
2.4 The Relationship between Psychological Distress and Unmet Needs among Caregiver of Children with Cancer 18
2.5 Summary and Conclusion 19
CHAPTER THREE RESEARCH DESIGN AND METHODOLOGY 21
3.1 Research Design and Sampling 21
3.1.1 Design 21
3.1.2 Sampling 21
3.2 Research Framework 22
3.3 Operational Definition 23
3.4 Instruments 23
3.4.1 Demographic status and children’s clinical status 24
3.4.2 The Supportive Care Needs Survey Partners and Caregivers (SCNS P&C) 24
3.4.3 The Hospital Anxiety and Depression Scale 27
3.5 Data Collection Procedure 28
3.6 Ethical Consideration 30
3.7 Data Analysis 30
CHAPTER FOUR RESEARCH RESULTS 32
4.1 Sample Characteristics 32
4.2 Unmet Supportive Care Needs of Parents of Children with Cancer 33
4.3 Psychological Distress of Parents of Children with Cancer 36
4.4 Relationship between Psychological Distress and Unmet Needs 37
4.5 Factor Related Unmet Needs and Psychological Distress 38
4.6 Qualitative Results 41
CHAPTER FIVE CONCLUSION AND SUGGESTIONS 43
5.1 Discussion 43
5.1.1 Unmet Supportive Care Needs 43
5.1.2 Psychological Distress 46
5.1.3 Relationship between Psychological Distress and Unmet Needs 48
5.1.4 Factors Related Unmet Needs and Psychological Distress 49
5.2 Limitation 55
5.3 Conclusion 55
5.4 Recommendation 56
REFERENCES 57
Appendix A. Inform Consent (English Version) 69
Appendix B. Informed Consent (Indonesian Version) 70
Appendix C. Research Instrument (English Version) 73
I. Demographic Data 73
II. Supportive Care Needs Survey Partner and Caregiver (SCNS-P&C) Original Version 74
III. Hospital Anxiety and Depression Scale (HADS) 79
Appendix D. Research Instrument (Indonesian Version) 80
I. Kuesioner Demografi 80
II. Supportive Care Needs Survey Partner and Caregiver Indonesian Version 81
III. Hospital Anxiety and Depression Scale Indonesian Version 85
Appendix E. IRB Approval 87
I. DR Moewardi Hospital 87
II. Dr. Saiful Anwar Hospital 88
Appendix F. Hospital Permit 89
I. Dr. Moewardi Hospital 89
II. Dr. Saiful Anwar Hospital 90
Appendix G. Permission to use SCNS-P&C 91
Appendix H. Permission to use HADS Indonesian Version 92
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